One of the things that became apparent to me early in my struggle with PSSD is that there are no promises of recovery. Worse, it often appears statistically likely that it won’t go away: that it’s permanent.
The uncertainty for the future might be the worst part of PSSD. Before PSSD I had led a normal and active sex life, was successful in school, and was relatively happy. That doesn’t mean that everything was ok, however, and I struggled with extreme anxiety over going to college in the coming months. I had always envisioned starting a family afterwards. It was just something that seemed part of my plan. PSSD changed the course of that plan overnight. I was no longer sure of how to talk to, date, or marry the right girl when I met her. The emotional toll of PSSD left me extremely unstable for over a year. This was during my freshman year of college, and seeing so many of my new friends succeed made me even more discouraged. Would I ever be normal again?
PSSD forced me to grow up. I think it forces most everyone who gets it in adolescence to. If there is some advantage that PSSD gave me, it’s that it given me drive in life, and allowed me to fall in love with helping other people. PSSD forced me to think about other people: what they go through, what makes them happy, and what keeps them up at night.
PSSD has made me restless. Relentless. I search for purpose in every waking hour, and work harder than I ever did before. People in the early stages of PSSD often ask me if I’ve gone back to normal. My answer to them: HELL NO! How could I? PSSD changed my view of the world so fundamentally that even if my sexually miraculously recovered tomorrow, I’d never be the same person who took Lexapro in the fall of 2014. Sexuality is no longer something that I view as functional or dysfunctional. Instead, it’s an immensely intricate abyss that is fluid throughout one’s life.
My biggest piece of advice to those on the first steps of their PSSD journey is to keep hope. Hope that PSSD will resolve, but even more hope that they can grow to be happy again. Millions of people are miserable even without PSSD (that’s why antidepressants are even around in the first place), and I know plenty of people with PSSD who lead happy and fulfilling lives. If you make happiness contingent of the status of your PSSD, you might never find it again. That doesn’t mean that it comes easy, or that the path is always clear. It simply means that regardless of what happened yesterday, nothing done today can ever change the past. This is most important on the days when you feel that nothing is left.
My next piece of advice is to stop reading the sob stories. There are many of them. Marriages ruined. Lives destroyed. Careers ended. STOP. Stop. It is addicting when you first get PSSD. It was for me at least. Even earlier today I got caught up reading a few of them, but I am careful to catch myself before they can send me spiraling into the abyss of worry and defeat. If I’ve learned anything from PSSD, it’s that nothing in life is truly certain besides birth and death. Everything in-between is a mystery. Don’t fill yourself with absolutes and stories written from unknown people from around the world. They are not you. They do not define you or your experience with PSSD.
Finally, don’t let PSSD stop you from living your life. I say that for the days when it’s easier, but especially for the days when it’s hard. Run blindly into the unknown, and do not fear it. If you do fail, you will do so knowing that you’ve tried. If you are unsure if you should ask the cute girl at the party for her number: do it. Do it fearlessly. Do it unapologetically. You are you no matter what has happened from an SSRI. If you haven’t left your house for days because the world feels foreign, force yourself out even if it doesn’t feel right at first.
Try everything. Love everyone. Hope everyday.
Ghost
Hi! I had serious withdrawal from ssri’s about over a year ago which left my life in total ruins. Tried to pursue a relationship – it went sour because of my withdrawal symptoms, which I didn’t believe to start several months after stopping ssri’s. I lost my job because I was just purely nuts and didn’t understand that my behaviour was totally crazy because of withdrawal, I just thought that I went nuts from falling in love. Well the relationship obviously ended because of my crazyness. Then I went in to psychosis, didn’t sleep for a year and tried suicide. It wasn’t my first time of stopping ssri’s, the previous time I also went in to psychosis but then I didn’t realize that it was a psychosis, just went on living with my crazy head. Now I haven’t had any sexual desire for a year and no social emotions, or need for socializing and severe anhedonia and zero motivation towards anything. I’ve read that PSSD might go away or not. I miss having feelings and being excited about stuff. I had no intetest in my previous hobbies and exercising but now I’ve slowly starting my hobbies and try to find enjoyment of something. Some days I cry that I might not ever be able to be in a relationship if my feelings and sexual desire doesn’tever come back and that my life would feel totally flat forever. Reading your post gave me hope, gave me hope to have a fulfilling life in spite of PSSD. To find my purpose and realize the meaning of other people, not dwell on my tiny little problem of not feeling anything, which is so miniscule compared to bigger things that happen in the world. Actually I had a huge crying burst a moment ago about my lost sexuality but your text helped me overcome it.
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