Activism is one of the main goals of the PSSD Foundation. Check back for more updates on PSSD activism campaigns.
Dr. David Healy: Rxisk.org
Dr. Healy has written extensively about PSSD and runs the website www.Rxisk.org. Dr. Healy received his training at Cambridge University in England.
“For over a decade there are reports that describe the link between SSRIs and sexual dysfunction that persist even after discontinuation of treatment. This severe syndrome may be due to a sufferer’s death. And ‘therefore necessary to understand the physiology and study of treatments.”
– Int J Risk Saf Med. , 2014
“I saw my first case of Post-SSRI Sexual Dysfunction (PSSD) 15 years ago and since then have met 10 or more people with it and corresponded with many more. There is a striking consistency to the clinical picture across sufferers caught in the account below. There is no doubt that serotonin reuptake inhibiting drugs cause this and can do so after as little as one week’s exposure. PSSD affects men and women and almost certainly the puberty of some teenagers put on SSRIs.
Tony Csoka was one of the first people to put PSSD on the medical map. Since then groups have formed including SSRIsex on yahoo groups and PSSD forum. The community of sufferers have gotten together and researched all the obvious possible remedies from dopamine agonists, to viagra, serotonin antagonists and hormones but nothing has been the answer so far. When we tried a previously untried remedy some weeks ago, people volunteered to come from as far afield as Holland and Brazil in the hope of some relief from this curse.”
– David Healy, Rxisk.org
He writes more about PSSD here:
The PSSD forum (PSSD Collaborative Research) dates back to 2011, when PSSD sufferer “Sonny” created the first PSSD community dedicated to PSSD research. What separated this effort from earlier reports on SSRIsex Yahoo group (2005), (the late) Paxil Progress (led by admin “Scotty”), and Surviving Antidepressants forum (2011), was that it was geared towards scientific research of PSSD. This varied vastly from previous communities that had promoted knowledge of PSSD as too complex too understand, and had warned that any attempted treatments would simply extend recovery time.
I became active on the forum in the fall of 2014. Unfortunately, it was shortly after this that the forum began to have problems with spam. It was around this time that I started moderating for Sonny. The forum grew quickly until January 2015, when the server that hosted the forum banned it without warning or reason. User “Moloch” re-hosted the site at its current location about a week after the old forum was shut down. Moloch saved some of the threads and reports from the old forum, but many were lost as well. Because the forum now owns its own address, it is safe from future closures and is backed up in multiple locations.
For the past two years, the forum has once again grown to nearly 400 members, and remains the most accessible and research-oriented community of PSSD suffers on the internet.