For the other categories, I don’t give specific references to practitioners. For this, I will. He is far and away the best PSSD doctor in the world, and he’ll make sure that you check off most of the boxes I mention in the other sections (Less time is spent on your mental health with him).
Dr. Irwin Goldstein is the doctor you want to see. He’ll take care of everything. He is wonderful, caring, and very intelligent. He cares about PSSD and wants to help. I say all of this with absolutely nothing to gain personally from recommending him. However, expect to pay around $2,000 + cost of hormone tests + costs of flights to San Diego + assorted costs. Overall, expect $3-4k for this trip.
If you have that money, find San Diego Sexual Medicine and go. The rest of this page will won’t matter until you get back from your appointment in a month or so.
If you don’t, or aren’t yet sure you have PSSD, I want to create a platform that allows you to do much of this work yourself.
See a Urologist
First, you need to rule out physical problems. There are many things that can cause physical ED. A urologist will be helpful with that. Don’t go to any urologist. Go to one at a big university hospital or other large clinic. If you need help finding one in your area, don’t hesitate to contact me.
You’re going to want to get a doppler ultrasound to look for fibrosis. Dr. Goldstein sees this in a lot of PSSD patients. I’ll eventually be writing more about this in the research section of this site when time permits. If insurance doesn’t cover this for you (which you obviously should check before), I suggest just eating the cost of visiting Dr. Goldstein. Why pay out of pocket for someone other than the best PSSD doctor to look for fibrosis?
If you have fibrosis, there are some new treatments that may be available. Again, email me after you have this positive diagnosis and I’ll try to help the best I can.
See a Physical Therapist / Pelvic Floor Dysfunction specialist
Get to a PT who specializes in Pelvic Floor Dysfunction of your gender. I wasted 3.5 years not doing this. My strongest recovery to date came after a PT session where my trigger points were released.
Read over this thread, it’s the best piece of info we currently have:
I’m in the process of putting together a PT protocol for PSSD/PFS/HF. This is information that every person should have.
